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Bluebird Bio Gene Therapy For Thalassemia

Each new day brings us closer to a breakthrough therapy that will someday eradicate thalassemia from the face of the Earth. I’m a fairly optimistic person, but I never once truly believed that a transformative treatment, outside of bone marrow …

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Growing Up With Thalassemia in Cyprus

The 2013 World Conference on Haemoglobinopathies introduced me to lots of people, one of whom is the writer of today’s blog post. Thekla Kyriakou and I met while walking in opposite directions in an outdoor walkway between two conference halls. …

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Living With Thalassemia in India

Those of us who live with a rare medical condition are often seen, but not heard. It’s very common to feel like we’re surrounded by people who have an opinion about us, like doctors with their diagnoses, but as patients, …

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