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Growing Up With Thalassemia in Cyprus

The 2013 World Conference on Haemoglobinopathies introduced me to lots of people, one of whom is the writer of today’s blog post. Thekla Kyriakou and I met while walking in opposite directions in an outdoor walkway between two conference halls. …

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Living With Thalassemia in India

Those of us who live with a rare medical condition are often seen, but not heard. It’s very common to feel like we’re surrounded by people who have an opinion about us, like doctors with their diagnoses, but as patients, …

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Wishes Come True with Make-A-Wish

The Make-A-Wish Foundation is probably one of the most incredible non-profits in existence. While most non-profits work on the back-end of illness (by funding research for potential new medications, therapies, and “cures”), Make-A-Wish works on the front-end of illness by providing …

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